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Endosalpingiosis can develop in any girl or woman or anyone that has a uterus. Although it is most commonly diagnosed in women in their 20s and 30s, Endosalpingiosis can begin in adolescence and can also affect women over 50 and postmenopausal women.

There are currently no statistics about Endosalpingiosis. The exact cause of Endosalpingiosis is still unknown. The goal is to get research started to understand the different possible explanations that go along with this disease. Very few doctors will even recognize this disease, which is why it is so important for everyone that has this disease to join the registry the foundation has set up. We need to get an accurate number of patients that this disease affects, which is why the data this registry collects is so important.

If you know anyone who has been diagnosed with this disease, please encourage them to join and fill out the registry questions located at the link below.